We just keep saying 3 more.... just 3 more treatments!!!!
Today is one more down!!!
Riley did so good. It was a long night though, he had anxiety all night and was scared to go. But he did it like a champ!!!
He got Dactomicin and since his eye droop STOPPED, they decided to give him 1/4 of the dose of Vincristine and if he tolerates it then they will gradually increase the dose.
Here are his counts:
WEEK: 1 2 3 4 5 6 7 8 9 10 11 12 13 16 19
HGB: 14.1 12.9 ?? 11.7 10.7 9.5 9.8 10.3 9.2 9.2 8.8 10.8 11.5 11.9 12.3 (less then 8 is bad)
Hct: 41.8% 37.8% 35% 33.2 30.2 27.4 28.6 29.7 26.5 27.1 25.1 31.4 33.5 34.2 34.9 (less then 24% is bad)
WBC: 10.5 4.7 3.6 4.2 2.3 1.9 6.3 3.7 3.9 2.8 1.9 2.6 2.85 3.3 2.8 (5.5 is a low normal)
PLTS: 621 288 272 347 280 288 466 168 265 475 319 318 400 378 329 (less then 30 is bad)
ANC: 7.6 3.0 2.2 1.5 1.5 .6 2.4 2.3 2.2 .8 1.0 .6 .8 1.2 1.0 (less the 1 is bad, less then .5 is really bad)
So his counts look good, his White blood count and ANC came down from last treatment, but the only one I'm concerned about is his ANC because it will continue to drop for the next 7-14 days....... AND........ that's when school starts.....
(take a deep breath, he'll be okay)(I will be in there sanitizing)(I am that mom!!!)(SIGH)
One of my cute younger sisters got to go with me this time.....
Today is Wednesday and Riley has done pretty good.
He had one throw up Monday night, 5 throw ups on Tuesday and so far 2 throw ups today. But he is still running around and smiling and has a little bit of energy. He even went out yesterday and jumped on the tramp!!
I am so grateful he is handling it so much better........ 2 more treatments...... 2 more treatments!!!
The best news EVER............
After his treatments...... and scans ....... and port removal......
RILEY GET'S TO GO TO LEGO LAND!!!!!
He got his wish!!!!!!!!!!!!
We COULD NOT be more HAPPY and EXCITED!!!!!
Thank you MAKE A WISH!!!
AWESOME!! That is great news! Thought I would check the blog since I saw you tonight and you were looking SO GOOD. Seriously. You are strong and Riley is such a fighter. Three cheers for LEGO LAND!!!
ReplyDeleteSo excited about Lego Land! You guys will be so ready for that wish to come true!!! :)
ReplyDeleteYou and Ang look so cute! 2 more treatments...can you believe that?? That is crazy! Riley rocks and so does his mom!! Love you!
oh that's fantastic!!! When do you guys get to go?! I'm so dang excited for Riley! You will have to post tons of photos...love you so much! You have such a great support system which I'm sure has helped so much.
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