We didn't get to get all dressed up in 4th of July colors and go to the parade or any parks, have a family bbq or even do fireworks. It was a wonderful different 4th this year!
We got Riley's labs drawn on Tuesday and his ANC was down to .6 which is extremely low. So how did we celebrate you ask????......
At the Condo!! Swimming and resting!!!
Chris's work generously let us use their condo, it is pretty secluded so we could be away from a lot of people but still have fun!
We spent 3 days at the pool! This is the first time Riley has been swimming and he was ALL SMILES!!!
Of course we had to be crazy careful and not swim while a lot of other people were there and also not push Riley's limit's. So when he got tired or when we thought he needed to rest, we would go back and watch movies or take naps.
The night of the 4th we went night swimming and was able to see fireworks from the sky. It was really fun! The boys loved it! AND we were safe and away from everyone!
oh yeah!! This is the life!! |
It's so fun to squirt mom!! |
Riley can't eat fast food when his counts are this low but it was okay because all he wants is cereal and slush's anyway!! The FAVORITE this week is Liger's Blood from Maverick!!
We had our first family restaurant night in 3 months as take-out from Texas Roadhouse!!! While Riley eat Fruity Pebbles!!
The boys wanted so badly to go to the movie theater and see Despicable me 2, we attempted it one day, but it was so busy we had to just say no. You would have thought it was the end of the world, Riley was so sad. That whole day all he said was, "can we go to the movie now?"
So the next day, we got up and went to the earliest showing, I went in and talked to the theater, saw how many people were there and where they were sitting, which thankfully there wasn't a ton!! And gave them the low down and that we needed the very back corner where no one was and please try not to seat people by us, and we were on our way!!!
Before we sat down, I brought my Lysol and sprayed everywhere, then I got out the Clorox wipes and wiped down the chairs..... YES we are a little crazy...... But it was now a sanitary environment and we could watch the show!! AND IT WAS GOOD!!!!
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Come Sunday when we left, Riley and I both started crying...... We didn't want to come home, we didn't want to come back to reality, we knew what this week would entail and we just didn't want to do it.
It was so nice to be gone and block CANCER out of our lives for just a couple of days. It was so fun while it lasted! Maybe if Riley gets feeling good again soon we can escape for another couple of days.... maybe!
This is just fantastic!!! I know it was just for a short time but I think it helped remind everyone that life will come back to normal eventually! It was so great seeing Riley and all of you enjoying time in the pool and at the movies! yay yay yay
ReplyDeleteAny little break in the 'storm' is a good one! Love you guys!
Awesome! I love that you are so prepared! Lysol...hand sanitizer...germs don't mess!
ReplyDelete