Wednesday, October 2, 2013

Monday Sept 29: Chemo week 25 LAST TIME!!!


I NEVER THOUGHT THIS DAY WOULD COME!!!

LAST TREATMENT!!! LAST CHEMO!!! THE VERY LAST TIME!!!
6 months of hell.... check!!
6 months of the greatest blessing I've ever had in my life...... check check!!

And Riley was very happy about it!! He was nervous of course, but all I had to say was "last one" and he would light up!!

So naturally, being the last day, I took pictures of EVERYTHING along the way!!!

 The waiting room! Coloring with dad!
 The room where they access his port and the doctors come in to talk!

Reading books with dad while we wait for the nurse!
Getting nervous to access his port......
 Wiping off the Emla cream (numbing cream) while crying because he is nervous!
 FEW..... it's done.... wipe the tears away!! What a brave boy!! So glad daddy's here!!

Here are his counts:
WEEK:      1    2    3     4     5     6    7    8   9   10   11   12   13  16 19 22 25

HGB:   14.1    12.9         ??      11.7      10.7    9.5   9.8   10.3   9.2   9.2   8.8   10.8   11.5    11.9   12.3   12.2    12.2            (less then 8 is bad)   
 
Hct:    41.8%    37.8%   35%  33.2    30.2   27.4    28.6   29.7   26.5   27.1   25.1   31.4   33.5   34.2   34.9     34.3    34.7           (less then 24% is bad)     
 
WBC:  10.5      4.7         3.6      4.2     2.3       1.9   6.3    3.7   3.9   2.8   1.9   2.6   2.85   3.3   2.8     8.6    3.6                    (5.5 is a low normal)

PLTS:   621      288        272    347   280      288   466   168    265   475  319  318  400  378    329     333       311             (less then 30 is bad)    

 
ANC:   7.6       3.0          2.2     1.5    1.5          .6     2.4    2.3   2.2   .8  1.0   .6   .8    1.2      1.0     5.4    1.3              (less the 1 is bad, less then .5 is really bad)

Here is our most amazing and wonderful Oncologist Dr. Afify! She tried really hard to get Riley to warm up to her, even after six months, he still didn't want to!
 Me on the there hand.... I just love her!! She's from Egypt and has an accent, most the time I have to tell Chris what she's saying!!
Very last Chemo treatment!!!!!!!!!!!!!!!!!!!
Then they de-accessed him and gave him a flu shot..... not to happy about that!!

But he was very happy about the song they sang to him and congratulated him on his last time!! It was so fun! (I'll have to post the video soon!)
Then off to ring the bell!!!
 This is what the bell is for.......

And we couldn't be happier to be on our way!!!

But not without pics of the best nurses EVER!!!
 Aubrey and Kristin.....
  Jessica.....
and of course there are more, but they weren't in at the moment!! We'll catch them later!!

And look at this BEAUTIFUL blanket someone made and donated filled with a pillow case and toys.........
These are the gifts they give whenever you get done with treatment, so if you ever wonder where you donated blankets and things go...... It's to these beautiful kids who fight for their lives and after all the poking and poison, get a fun gift at the end! We will always treasure this!! Thank you to who ever "GAVE"!!!

When we got home, this is what we found........
 Riley was so excited to get balloons and an awesome poster and of course, Fruity pebbles!!!
 Thank you to whoever did this!!! And also thank you to my sister Amanda for getting the goodies below so we could celebrate!!!

This was one of the most nervous, exciting, happy, hard, scary and wonderful days I've ever had.
I'm so glad I have the most amazing husband that could be there with us today and has been there MORE then I ever imagined through this whole process! I married the best man and daddy on this earth! I love you babe!

Were not done yet.... We go back in 2 weeks for MAJOR scans, and if they turn out good, then we will have surgery the following week to take out Riley's port.

So, the hard part is done, the scary part is coming and then maybe I can lower my meds!! haha!!!!

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