Monday, April 14, 2014

Make a wish Star raising


In March Riley and ALL of our family got to go the Make-A-Wish for his star raising ceremony. It was so incredible!!


 He gets a star and writes on it then he gets to help lift it to the ceiling where all the other stars and hung from every child that has every been granted a wish.

 His is the only blue one mixed in with red and orange! It's in the perfect spot!!

All of our family was there except 2 family's, we had a tore of the building and had cake to celebrate!!
Here is a picture of my family. Chris's ended up having to be somewhere else towards the end, when we broke out the camera for family pics!!

We cannot thank you enough Make-A-wish Utah!! And all who has donated to this incredible charity. Thank you also, to, Steve!! Our volunteer, who has been there through all of this and helped make everything happen!!

Riley says at least  3 times a week how much he misses Florida and how bad he wants to go back!


The bad part about this is...... Riley says he can't wait to get cancer again and make another wish to go to Australia!! HaHa!!! Not funny kid!!

6 month scans!! Freedom for 3 more months!!!!



I can't believe it has been 6 months and 2 weeks since our last chemo treatment!!
And I can't believe it has been 3 months since I last updated!

We are once again free for 3 more months!!!!
 Best feeling in the world!!! 

We had a CT today with I.V. contrast as well as the "Root beer" drink contrast. He did awesome! He was scared when they did the I.V. and took it out, but that was all! He also didn't like the "smell" of the hospital or the hand sanitizer! I'm pretty sure he's scared for life!!
We met with the oncologist and she said the scans are good and the spot on his liver is the same as it was. I wish it was gone, but I'm glad it hasn't grown!!!
Labs looked awesome!! And urine was perfect!! 

But the BEST thing of all (according to Riley) is his massive amount of hair!! The kid won't cut it and it's thicker and longer then ever!!! 

Deep breaths, momma's right here!

This little machine with the blue, red and yellow dots, is the contrast die machine that injects the die into Riley's  I.V.  They said it makes him feel warm all over inside!


We are loving being NED!!! (no evidence of disease)
Riley is doing so so well!! 
He has been living each day to the fullest!

We celebrated his 1 year since diagnosis mark, on April 1st!! Riley and I made chocolate and yellow cupcakes and took them to class along with his wrist bands to thank everyone for loving him and helping him through this year! We also delivered some to the doctors office!! Then we went to his favorite place to eat dinner, Texas Roadhouse! He wanted Ribs!! 
It was a GREAT day!!!

I haven't been posting because it brings me back to a place I don't want to go.
I know so many of you are concerned and worried about us. I want to thank you for that. I will try harder to post more, especially now that they are happy good posts!!!

One of them being..... He has lost 3 teeth and one more to come out shortly!!


I think about the last year and the one thing that comes to my mind is.......
Did I thank everyone and is it enough? We have been so blessed by so many of you good good people and there were times that I didn't even remember nor cared what my first name was!!
Everyone who cleaned my house from top to bottom (by the way, it's been a year, you can come back anytime and do it again!!!)
Every meal that was brought in, everyone that took time out of your lives to stop by and check in on us, everyone who couldn't stop by but thought and prayed for us. The money that was donated to us, the care packages, the friendly how are you doing. The fundraiser. The wonderful people who gave us a car so we wouldn't have to have a car payment.
We can't possibly THANK YOU enough. 
Please know how eternally grateful we are.
We have been SO BLESSED.


6 month scan lab results: 

HGB:   14.1    12.9         ??      11.7      10.7    9.5   9.8   10.3   9.2   9.2   8.8   10.8   11.5    11.9   12.3   12.2    12.2   11.7    14.1   14.7  (less then 8 is bad)   
 
Hct:    41.8%    37.8%   35%  33.2    30.2   27.4    28.6   29.7   26.5   27.1   25.1   31.4   33.5   34.2   34.9     34.3    34.7   33.3   37.6  40.1    (less then 24% is bad)     
 
WBC:  10.5      4.7         3.6      4.2     2.3       1.9   6.3    3.7   3.9   2.8   1.9   2.6   2.85   3.3   2.8     8.6    3.6     4.3     9.64    6.7      (5.5 is a low normal)

PLTS:   621      288        272    347   280      288   466   168    265   475  319  318  400  378    329     333       311    308   398   270   (less then 30 is bad)    

 
ANC:   7.6       3.0          2.2     1.5    1.5          .6     2.4    2.3   2.2   .8  1.0   .6   .8    1.2      1.0     5.4    1.3     1.9    6.4  3.4   (less the 1 is bad, less then .5 is really bad)